Tuesday, May 1, 2012
Long wait between posts
We also took the kids to Disneyland. I realized quickly that my stamina is still not where it needs to be. I think I made it 8 hours on one day but usually only lasted for 6 hours. The good news is that we had a 6 day pass to Disneyland so the kids didn't complain about leaving early every day. So much fun to spend that time with family. We love Disneyland and I'm glad we have made it a favorite destination...but Michelle and I still deserve Hawaii. :)
I think I mentioned this before but we were very concerned about Dr. Legant. She switched Medical Networks. She is now part of the Huntsman Cancer Institute working out of the UofU medical facility in Daybreak. My insurance company doesn't cover that network. I did a lot of legwork and found out that I can still see her and pay out of pocket for her visits and she can send me to IHC for scans and labs. That made me feel so much better. When you have a Doctor that you trust and that knows your entire history, you don't want to change. I know there are many other good Oncologists, but I trust her.
I'm hoping for another scan later this month. I think she wanted to wait 6 months but I want a second clean scan. That will make me feel even better.
The vegetarian diet is still in effect. I feel very good about it. It can be hard at times but for the most part, I don't notice. In fact, the other day, a team was having a pot luck lunch. I walked over to talk to a co-worker and I had to leave quickly because the smell of beef was so terrible to me. No offense to my carnivorous friends out there, my nose has become very sensitive to beef. I am sorry to report that I'm not losing weight but that will come if I start exercising. I tried to run with the young men the other day and I made it about 3 blocks and had to walk (what a wimp!).
I know this post doesn't make up for the month and a half that I haven't blogged but I'll try to be more consistent going forward.
Monday, March 12, 2012
This one's for NED...
Sunday, March 4, 2012
Miracles
Monday, February 27, 2012
Did I read that correctly?
uptake was detected.
At the thorax no abnormal hypermetabolic uptake was detected.
At the abdomen and pelvis no abnormal hypermetabolic uptake was
detected.
Foci of increased activity described on the prior study at
mesenteric lymph nodes have resolved over the interval. CT of the
abdomen shows progression of lymph node nodules although there is
persistent mesenteric density, which is not hypermetabolic by PET
scan. This shows mild decrease in size over the interval.
No osseous site of abnormal uptake is detected.
IMPRESSION: Currently there is no focal abnormality that is
Sunday, February 19, 2012
One Year Ago...
Friday, February 10, 2012
Dear Cancer...
Tuesday, January 24, 2012
Quick Update
| Name | Normal Range | 01/16 2012 | 11/28 2011 | 09/26 2011 | 07/26 2011 |
|---|---|---|---|---|---|
| WBC | 3.6-10.6 | 4.8 | 3.6 | 4.6 | 4.0 |
| RBC | 4.50-5.90 | 5.12 | 5.28 | 4.92 | 4.69 |
| HGB | 13.5-17.5 | 15.2 | 15.6 | 14.6 | 14.3 |
| Hct | 41.0-53.0 | 44.7 | 45.3 | 42.6 | 42.0 |
| MCV | 80.0-100.0 | 87.3 | 85.8 | 86.8 | 89.6 |
| MCH | 26.0-34.0 | 29.7 | 29.5 | 29.8 | 30.5 |
| MCHC | 32.0-36.0 | 34.0 | 34.4 | 34.3 | 34.1 |
| RDW | 11.3-15.6 | 14.6 | 15.1 | 13.7 | 14.1 |
| PLTS | 150-400 | 253 | 240 | 255 | 235 |
| MPV | 6.6-10.1 | 7.4 | 7.8 | 7.5 | 7.6 |
Monday, January 16, 2012
Elder Prawit's Favorite Food
Wednesday, January 11, 2012
不思議 Fushigi
Wednesday, December 21, 2011
Jimmy's Christmas Rock
Jimmy's Christmas Rock
By James W. Carbine
Young Jimmy often visited Grandma, but this particular night was to be the beginning of an unusual event.
It was rather chilly, and a friendly, coal-fed fire crackled in the fireplace. Several large pieces of shining, ebony coal lay on the hearth. The youngster's first encounter with coal soon produced the inevitable question, "What's that?" His father, glancing up from the adult conversation, trying to add a little humor, said, "That's a Christmas rock, and if you're good, you'll get it for Christmas."
The rest of the evening was spent without much thought given to Dad's so-called joke or its absence of laughter.
As the November night grew colder and the fire dimmer, the remaining pieces of coal were added to the fire. Then it happened. Everyone realized Dad's humor had been taken very seriously by at least one person. Dad glanced down to see who was tugging on his sleeve and was met by a heartboken look of a 3-year old. Jimmy, fighting back the tears, said, "Grandpa burned away my Christmas rock."
Grandma soon pacified Jimmy by telling him she would make sure he got another rock for Christmas. She did, however, include one more condition. Jimmy had to kiss her at every meeting in return for the gift. So the evening concluded with everyone happy, with maybe the exception of our would be comic, Dad.
In the week that followed there was the usual excitement for Christmas shared by everyone. But for Jimmy there was a special excitement, as he waited to become the owner of his Christmas rock. Whenever asked the question, "What do you want for Christmas?" the first and often only answer was, "A Christmas rock."
His enthusiasm spread and soon his younger sisgter, Charlene, had made the same arrangement with Grandma, and she too was anxiously awaiting the blessed day.
In a time of electronic gadgetry, talking tooth brushes and all sorts of glittering toys on the market, it amazed people that a youngster could be so fascinated by a black ugly, piece of coal. The same coal used in Christmases past to punish children was now a reward for being good.
Soon the festive holiday arrived, and as promised, there under the Christmas tree lay two beautiful Christmas rocks, strangely resembling two ugly hunks of coal. The tricycles, electric trains, and dolls created almost as much excitement and joy; but when asked which present would be taken as the family visited friends and relatives, there was never really any doubt as to what Jimmy and Charlene would take.
In their travels that day, they beamed with joy when asked what they got. They quickly showed their pride and joy--their rocks.
One cousin, about the same age as Jimmy, felt quite bad that he didn't have a Christmas rock. Grandma again came to the rescue promising yet another piece of coal (however, after dropping his Christmas rock on his bare foot, the cousin lost most of his admiration for it).
Though the newness soon wore off, the pride in ownership remained. Today seven years later, the rock remains proudly perched on a shelf like a trophy. Grandma still collects her kisses, and anyone entering Jimmy's room is immediately shown the rock.
Several months later as Grandma's birthday approached and a present was being discussed, young Jimmy suggested, "Let's get her a Birthday rock!"
Thursday, November 24, 2011
Don't Waste Your...
It has been a rough week and a half. My Dad went into the hospital on Monday, November 14th. He has Pancreatitis. He has been in so much pain. It is hard to watch someone that you love suffer so much. It has been tough on my Mom as well. She is so tired. Unfortunately, we had to have Thanksgiving without him today. I can't wait for him to be back to his old self. This experience has really made me appreciate how Michelle and my family must have felt while I was going through treatment.
We have a PET Scan on Monday. Is it possible to be excited and scared at the same time? I want to know how the cancer is progressing but I'm also scared of what we will find. I'm very hopeful that we will see very little progression at all. I still owe Michelle a 20 year anniversary trip next spring and I'd like to feel good when we go. Michelle is a trooper. We don't have drama in our lives. I couldn't have picked a better mate.
I expressed gratitude in my last post but once again, I'm thankful for all of you. Thank you for your prayers, we continue to need them and we know that we are much stronger because of them.
Don't waste your challenges. Embrace them, learn from them, and realize how blessed you are because of them.
Sunday, November 13, 2011
Cancer Blogs
I'm five months out from my last chemo treatment. There is a strong chance that I will eventually have to do something more, but until that time, I feel great! Since my return to work, in June, I haven't missed a single day due to health reasons. I had a minor scare last week but I'm feeling really healthy. I know, I know, I shouldn't jinx myself. I'm just trying to point out that I've been very fortunate.
One thing that I have realized from reading all of these blogs is that there is always something worse that I could be dealing with right now. I read heartbreaking stories of families who lost a pregnancy due to treatments, others who have battled with several different types of cancer and finally some that finally succumbed to the disease. It truly breaks my heart!
I'm sorry to all of you that were scared by my illness. Especially my family. I will never forget sitting down with my kids and telling them about my diagnosis. I tried to be calm and assure them that everything would be alright. I truly felt peace at diagnosis, but I hope I didn't minimize the seriousness of cancer for them. I'm sorry to Michelle. I told her over the phone...looking back, that was terrible but I knew she was so anxious about what was going on. We've shared a few tears but more than anything...we have become so close!
In this month of gratitude, I'm grateful for all of the men and women that preceded me in this cancer experience and have shared their experiences. It is so helpful to know that others have gone through very similar experiences and I'm able to learn from those shared experiences. It really does help me and I'm sure it has helped many others as well.
Here are a few other things I'm thankful for:
- Michelle - I've said it so many times, she is my rock!
- My kids - you make the fight easy
- My parents and Michelle's parents -you've done so much for us
- My siblings - you make me smile
- Extended Family - I realize how important all of you are to me
- Friends - I was looking at all of the cards that we received from our friends. There were so many, now multiply that by 1,000 and we might be able to capture all of the phone calls, emails, visits, etc...
- Dr. Legant - I made a recommendation for her on Facebook the other day and I stand by it. She is a great Oncologist.
- Chemotherapy - Did I just say that? Despite the side effects, I'm grateful that it knocked the tumor down to nothing.
- Time - Even though I know that I will most likely have to face additional treatment, I'm really grateful for this time of feeling good.
- Health - A high school friend whose family has fought with cancer has a joke. They like to say "At least you have your health." I like it and I think about it often. It is a joke but I am pretty lucky. I'm glad I've always had a pretty good immune system to keep me healthy.
Finally, I'm making some changes in my life to hopefully help me. I'm eating mostly vegetarian. During the week, I am a vegetarian. On the weekends I will relax a little bit. I've read of so many health benefits from being a vegetarian. I realize that you can be a vegetarian and still be unhealthy. I'm not making too drastic of a change for now but the goal is to give my body the best opportunity to fight this nasty disease and hopefully keep it from spreading. I guess I'm struggling a bit with faith right now. Not so much faith in God but rather faith in the healing process. I want to sign up for a race but I'm so scared that I won't be able to do it because of my health. If I really had faith, I would jump in and not be concerned about the future.
I have a PET Scan on 11/28/2011. We will see what that brings. I realize that I'm basically asking for a sign before I exercise my faith. I typically don't need that but in this case, it would sure help.
Check out the other blogs that I mentioned. Especially if you, someone you love, or even an acquaintance is battling cancer. There are a lot of people that are much smarter and definitely more eloquent than me that can provide real help.
Saturday, November 5, 2011
Feeling Sick
I came across the following quote later today and it was perfect for me:
Courage doesn't always roar.
Sometimes courage is the quiet voice
at the end of the day saying,
"I will try again tomorrow."
-Mary Ann Radmacher
I don't know Ms. Radmacher but I'm grateful for this wonderful quote. I'll be courageous tomorrow (or at least I will try).
Michelle wants me to call Dr. Legant on Monday morning. I told her it depends on how I feel. I'm just really grateful that we didn't have anything to do today. We did have a dinner set up with some very good friends but I called and mentioned that we would need to take a rain check.
Here's to a better day tomorrow...Oh and we get to set the clocks back one hour. I love it!
Saturday, October 29, 2011
Speaking Thai (Pumpkins, Crosses, and Trousers)
That is not the story that I wanted to tell though. When I was 3 months in country, I went to a new city to help with the fair. The city was Phitsanulok and we built a mock temple with pictures inside to present to all of the attendees at the fair. The front facade was that of the Salt Lake Temple (no where near as nice). The booth was very well attended. It was actually a great opportunity to use my recently learned Thai. I spent the days talking about Temples, Jesus Christ, and many other gospel topics.
I was getting a little cocky. I thought I could speak so well! An attractive young lady came in to the booth. We didn't have sister missionaries in that city, in fact we were the only two missionaries in the whole city. I began giving her the tour and showed her the pictures as I discussed the gospel and shared my testimony. At one picture, she became very interested. It was a picture of the Savior on the cross. I thought it was very impressive of her since many Thai's did not know about Jesus Christ. I became excited as I thought the message was sinking in. Then it happened! She asked the question...not the question that I wanted but a question. She pointed to the picture and asked why we don't wear those around our necks (speaking of the cross) as she had seen other Christians wear crosses. In my most eloquent Thai I told her, "We don't wear crosses in our church". Only trouble is that I got the word for cross wrong. I told her that "We don't wear pants in our church". She blushed, I knew instantly that I had messed up. You see...the word for cross is Gaankhen and the word for pants/trousers is Gaanggeng.
I tried to laugh it off and move on but we were both embarrassed. Funny thing is that she ended up taking the discussions. She did not end up getting baptized but it was a great learning experience. I've heard of other stories of new speakers making mistakes. I know my Dad once got engaged to a cute little Japanese girl but not intentionally. Please share your experiences with us.
Monday, October 24, 2011
My "Man Card" Has Been Revoked
I've been feeling pretty good lately. I've been trying to walk on the treadmill. I've only made it 3 1/2 miles so far but I'm working up to more. Even though I am very tired when I finish, it makes me feel good when I am exercising.
I read an interesting quote the other day andI can appreciate the message now more than ever before. It says:
"We have no right to ask when sorrow comes 'Why did this happen to me?' unless we ask the same question for every moment of happiness that comes our way." Author - Unknown
This is a great way to look at life. I think my blog keeps me humble and helps me remember how lucky I am to be here. I will admit that the further I get away from treatment, the less I think about the big challenge. Don't get me wrong, I think about it every day, I just don't reflect on how lucky I am. I hope I never forget what I've been through.
In the meantime, I'd better get back on the treadmill and start earning my "Man Card" back. :)
Saturday, October 15, 2011
Melancholy...
Fast forward to today...I attended another HopeKids event. This event was at Jordan Commons, they were hosting a screening of "Dolphin Tale" for the kids. As a reminder, these events are for kids with life threatening illnesses. We were helping with sodas and popcorn. As I watched these amazing kids and their parents, I suddenly forgot about my problems. There was a boy in a reclining wheelchair. He had a breathing tube and had a rough time speaking. He was wearing a BYU baseball cap and had a BYU blanket. I said, "Here's my guy!" I went to talk to him about BYU football. He smiled and we had a brief conversation about the game today. He knew that they were playing Oregon State at Oregon. He then asked me where Oregon is located. I briefly explained that it was between California and Washington. As his Mom pushed him away, I said "Go Cougars" and he laughed.
Life could be so much harder. I'm able to go to work, have a normal life and I'm fairly healthy (even with cancer). I have so much to be grateful for, I wonder if that little guy even knows what a "normal" day feels like. I would guess that his normal is so much worse than anything I've ever felt. I walked away feeling like a shmuck! I have it good. I came home to my nice house, watched the Utah and BYU games on TV, when I got hungry, I made a sandwich. Life could be so much worse.
I know some of you were able to notice that I wasn't myself these past few weeks. Thanks for putting up with me. No more pity party for me. I need to remember to serve others when I'm feeling down. I love to serve! I wasn't thrilled about getting up early on a Saturday morning but I'm so glad I went. I don't know that little boy's name, but to him I say "Thank you! Thank you for putting a smile on my face in the midst of your enormous challenge!"
Wednesday, October 5, 2011
It's Better To Look Up
I have to admit, I wasn't always a fan. When I was younger, my Mom and Dad used to suggest a long car ride on conference weekend. It was brilliant! We were a captive audience. As I grew a little older, I began to appreciate the messages.
This last weekend was great! Many great messages. There was one talk in particular that I loved. It was titled, "It is better to look up" by Elder Carl Cook. At the beginning of the message, he told a story of when he was first called to be a General Authority. He was feeling overwhelmed and was riding the elevator down. The elevator stopped on a floor and someone entered. Elder Cook was feeling burdened and looking at the floor. I'm paraphrasing now but the person that entered the elevator happened to be Thomas S. Monson, our Prophet. He asked Elder Cook, "What are you looking at down there?" The answer was "Oh...nothing." President Monson then said, "It's better to look up."
President Monson was giving encouragement to this new church leader and was recommending that he seek after the Lord. I had several thoughts when I heard this story, I thought of several things:
1. I've always been a fan of prayer. I haven't always been the most consistent with my prayers, but I have learned over the years that things seem to go better when I pray. Don't get me wrong, I still have challenges (obviously), but I have a sense of peace about those challenges.
2. Looking up is synonomous with something positive. Since my latest scan, it has been harder to "look up". I'm still very confident in the prognosis but I'm also discouraged. I wanted a clean bill of health. Not yet and probably won't get that clean bill of health for a while.
3. If you look up to someone, you admire them and/or respect them. I look up to so many of you that take the time to keep tabs on me and my family. I look up to my parents and Michelle's parents. I look up to my sweetheart and our kids. I look up to my extended family (brothers, sisters, aunts, uncles, cousins). I look up to so many of you and you will probably never know because I don't share that type of info very often.
4. Most importantly, I look up to my older brother. You may be thinking "But you're the first child in your family." Yes, but I have an older brother named Jesus Christ. He is still the only one that knows exactly what I'm going through. He suffered for us and knows our trials (challenges).
I love General Conference! It really is better to look up!
Tuesday, September 27, 2011
Not Sure What It Means...
Findings: At the skull base and neck no abnormal hypermetabolic uptake is detected. (This sounds good)
At the thorax no abnormal hypermetabolic uptake is detected. (This also sounds good)
In the central upper abdomen there is a new mesenteric focus of increased activity, which measures 1.9 cm in diameter. It is centered at CT transverse section 156 with maximum SUV 4.8. (This doesn't sound good)
Three other sites of abnormal hypermetabolic uptake persist in the abdomen. Mesentery focus at CT transverse section 163 shows SUV of 2.4. This previously measured 5.3. (Mixed on this one)
Increased activity is seen at two other sites in the mesentery and these have increased from a previous maximum of 4.1 to 6.2 SUV. (Not so good?)
At the pelvis no abnormal hypermetabolic uptake is detected. (Good)
Impression:
1. A new mesentery hypermetabolic lymph node has deveoloped over the interval.
2. Other sites of abnormal hypermetabolism show a mixed response since the prior study. Several sites show increased standard uptake values since the prior examination.
Too soon to get overly upset or concerned. Regardless of the outcome, we are ready to fight...again!
Monday, September 19, 2011
My Attempt At Film Making
Saturday, September 10, 2011
What Is Happiness?
- Focus on the positive - I know this is very cliche' but it is true.
- Be happy today - I'm sure we all know people that are always looking for the next big thing and aren't happy today.
- Make happy deposits - Find those moments that you can recall during the less than happy times.
- Enjoy your family - They are a great source of joy.
- Be grateful - When we can be grateful for our challenges, we grow and appreciate it more when we overcome those challenges.
- Give more - While most of us think of money when we say "Give more", I think it is more important to give of yourself. Do what you can to make other people happy and your happiness will increase.
- Expect less - This doesn't mean we should lower our standards but if we always set the bar really high and rarely reach that bar, we will be disappointed.
Sorry to get philosophical on you but I've had a few experiences recently that made me realize that some people aren't happy and in most cases, it is their own fault. I love my sweetheart, she is a very happy person. My kids too! We laugh, we love eachother and we are happy. Life is good and we all should be happier!